SSIEM Satellite
Cerebrotendinous Xanthomatosis Scientific Meeting; Jerusalem, Israel.
See website here
(including abstract and registration info) and flyer posted here.
August 27-28, 2023
SSIEM Satellite
INFORM (International Network for Fatty Acid Oxidation Research and
Management) Scientific Meeting; Jerusalem, Israel.
See information posted here.
International Porphyrias Symposium
Bethesda, Maryland, Hyatt Regency.
This meeting will include a 4 hour "Introduction to the Porphyrias" for those with little or no experience with the Acute Hepatic or Erythropoietic Porphyrias
See
information here.
October 27, 2023
Classical HCU Externally Lead, Patient-Focused Drug Development Meeting
Virtual Event, 10:00-15:00 EDT.
The goal is to hear from patients on what it's like to live with classical homocystinuria to better understand the patient experience and help the FDA make informed decisions.
information here.
March 12-16, 2024
ACMG Annual Meeting
Toronto, Metro Convention Center.
See information here.
April 14-17, 2024
SIMD Annual Meeting Charlotte, NC
Sheraton/Le Meridien Hotel Complex
The last day will be in conjunction with GMDI.
Information to follow.
2024
SSIEM- Porto
March 18-22, 2025
ACMG Annual Meeting
Los Angeles, Convention Center.
See information here.
